Something new to report! My counts are coming up a tiny bit.
Platelet: 15K
White: 90
Red: 30.6
It is all becuase of the transfusions and shots but I am still psyched that they are not below 50. I still don't have any neutrophils but they should be showing up soon. I am totally getting my hopes up that maybe I will get out of here a week from now. I shouldn't but I can't help it.
The mouth stuff still sucks and the doctor said once my counts really come back it will disapear. Let's hope so.
More tommorow.
A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Lee
“Therefore, do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”
Charlotte
ALEX
Blog Archive
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2007
(145)
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January
(32)
- Day +14
- Darn fevers
- Day +13
- What to bring to the hospital
- Day +12
- Day +11
- Day +10
- Kids
- Day +9
- Day +8
- Day +7
- Day +6
- Day + 5
- Day + 4
- Day +3
- Day+ 2
- Day +1
- Day 0
- Day -1
- Day-2
- Day -3
- Day -4
- Day -5
- The what's next and what if's
- Day -6
- Day -7
- Lee's birthday
- Check in day -8
- Fever and night before check in
- Bone marrow harvest
- Schedule
- Thank god for the New Year
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January
(32)
Followers
A QUICK TIMELINE
2006
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
Good Links
Maple
2 comments:
Sending my best wishes to you for a quick recovery. My twin sister had her stem cell transplant six months ago and is doing well today. Stay well, fight strong and God bless you.
Hi Heather, It is great news that your counts are coming back up! It sounds to me like you're turning a corner. Re mushy foods: how about applesauce, mac & cheese or sorbet? Hope you have a great day today. All of us from OPIC send you our best. - Karen Roberts
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