Sorry for posting so late. I was sleeping away most the morning. My white blood counts are getting pretty low and I am wiped out.
Enjoyed seeing my mom last night and she brought up my Aunt Linda for a visit.
I am crazy tired and will try to write more tomorrow.
A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Lee
“Therefore, do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”
Charlotte
ALEX
Blog Archive
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2007
(145)
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January
(32)
- Day +14
- Darn fevers
- Day +13
- What to bring to the hospital
- Day +12
- Day +11
- Day +10
- Kids
- Day +9
- Day +8
- Day +7
- Day +6
- Day + 5
- Day + 4
- Day +3
- Day+ 2
- Day +1
- Day 0
- Day -1
- Day-2
- Day -3
- Day -4
- Day -5
- The what's next and what if's
- Day -6
- Day -7
- Lee's birthday
- Check in day -8
- Fever and night before check in
- Bone marrow harvest
- Schedule
- Thank god for the New Year
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January
(32)
Followers
A QUICK TIMELINE
2006
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
Good Links
Maple
4 comments:
Hey cousin,
Just saying "hi." I love reading your blog everyday. It helps me feel closer than 3,000 miles away. Thanks for all of the postings, especially when you are exhausted. That is great that they were able to harvest so many healthy cells. I love your attitude about continuing to get up, shower, walk, etc if you have any energy to at all... your nurses must love you :). I totally agree with the hospital food thing. Sometimes I bring trays into patient rooms thinking, "How could they even SEND this?" It is sad, but the only edible stuff in our hospital cafeteria is the greasy food, so the kids on my floor pretty much each chicken strips and fries for every meal. I don't blame them. Say "hi" to your mom, Dave, the little z's, etc for me. I miss all of you, Jessica
Hi Heather, We've been thinking of you through all the treatments but this blog really helps us understand how you are managing day to day. It sounds as if you are being just as brave and sensible as can be. Stick with the grim food, lots of sympathy there.
We love the photos of the little zs, give them all lots of love; we're hoping to meet little Alex as soon as we can manage.
Love from us all, Steven, Bridget, Ben,Oliver and Freddie (would they be quarter zs?)
JESSICA HAD TO SHOW ME HOW TO DO THIS .....DUH. IT IS GREAT THAT THE KIDS GET TO SEE YOU SOMETIMES...I HAD THE MISTAKEN PERCEPTION THAT THEY COULD NEVER COME INTO THE ROOM...AND THAT SEEMED VERY SAD. SO KEEP DOING WHAT THEY WANT YOU TO DO SO YOU CAN GET THE DEVIL OUT OF THERE SOONER NOT LATER! LOTS OF LOVE TO YOU, DAVE AND THE LITTLE Z'S. AUNT JOYCE
Hi Heather. Just a quick hello to let you know I read every day and think of you all the time. I still remember stuffing OMAR packets when you were planning your wedding and you telling us all about giving away trees at your wedding. The group was full of sarcasm (shall I name them...me, Ezra, Michele, Kathleen...;-) and we all got a great laugh while doing our mundane tasks. That sure was a sign of what an incredible caring person you (and Dave) are as you were concerned with growing a tree for the future generations instead of chocolates with your names! I need to tell you THANK YOU as you inspire me to be a better mother and wife and take more things in stride. Your strenght and spirit is truly a gift you give to others and I just wanted to tell let you know. Hang in and I look forward to hearing about the date you get to go home!
Laura P.
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