Tuesday, May 20, 2008

Good weekend

We had a good weekend and I thought I would share some pictures of the kids. Lee is turning into a teenager right before my eyes. He bought himself a skateboard at our church yard sale and is begging me for an ipod.

Thanks for all the emails and posts. I appreciate everyones kind words and I am just positive that this MRI in June is gonna confrim that I am still cancer free.

Monday, May 12, 2008

This is a post I have been dragging my feet to type. My neurologist phoned last week with some unsettling news. I had taken my spinal tap slides up to Hopkins so they could do their own lab work and unfortunately the ever diligent Hopkins staff found signal abnormality in my T6 region. What does this mean? My neurologist said in 90% of the population they would not suspect anything but in my case (history of primary refractory cancer) they have to follow up to rule out cancer. How do they do this? Since I am currently on steroids for my transverse myelitis they need to get me completely off the steroids, wait, then do an MRI. I guess the steroids could skew any test results so it is best to wait. The MRI will be the first week of June.

So all in all it looks like I have a 50/50 chance that the Hodgkin's is back and in my bones. Dave and I are thinking positive and keeping hope alive that it is not cancer and that for once I am just like the rest of the population and this is nothing to be concerned about. Also, my next PET scan is scheduled for June too so we are just taking this in stride - just another scan to confirm that I am in remission.

I know I can handle anything that is thrown my way - I just pray that I only have to deal with these pain/mobility issues and not cancer again.

If you have the time these next couple of weeks keep the thoughts, prayers, good vibes coming - NO MORE CANCER for Heather please! Thank you very much.

Saturday, May 10, 2008

Mom's birthday party

Finally put together some video from my mom's 60th birthday party in December. I am posting it here in case my link to the video didn't email out properly.

Saturday, May 3, 2008

Feeling the buzz

Coming down from these drugs and doing the steroid taper just gives me the craziest buzz. I am sort of in la la land and I guess it is a throw back to my youthful pre little z days. It is a little tricky navigating the world buzzed with 3 kids under the age of 6 but thankfully Dave is back home and can make sure Alex doesn't crack his head open.

My symptoms are in full force again without my SOL-MEDROL but I am managing. I guess the trick is to just make sure they don't get worse. I am putting a follow up to see the doctors on my to do list for next week.

In the meantime life goes on. We are busy playing in our backyard, planting flowers, and Dave is attempting to build a tree house for the kids. The summer is fast approaching and we are all super excited to hang out and enjoy the outdoors.

Life is good.