Still waiting on Avastin

I am still waiting on my next treatment - insurance is dragging its feet approving this next round. Last I heard they want another 15 days to determine if they will approve it.

In the meantime, I made it back to therapy after 2 weeks away with my sickness and watching the sick kids. My therapist and I are trying to mount our case to get more therapy visits from insurance. Asking for experimental therapy (avastin) and more rehabilitation therapy at the same time might not be wise but it really just boils down to the fact that I need both so hopefully they will agree.

Until the insurance approves more therapy (pray to god) I will be taking a break to conserve visits for right after my avastin treatment. Since my therapist (and I) believe we get more results after the drip it is best to wait until then to kick therapy into high gear again. It is amazing to think that my insurance company believes I only need 30 physical therapy visits a year. That so doesn't cover what I need to walk again. Well I guess if I want to walk again in about 10 years. Even at this rate it will probably take 3 years..........I just need to keep praying for patience.

Although I will not be going to intense physical therapy 2 x's a week we have devised a plan so I won't be sitting on my butt watching it spread. I have ordered and received my own personal zapper, will be getting a stander, will enlist a local physical therapist to help with my strength training, and attend open gym in Baltimore 3 x's a week to ride the bike that zaps my muscles. So no vacation just a different approach. The therapists in Baltimore also mentioned they want to get me into a study so this whole insurance thing isn't an issue. Wouldn't that be marvelous.

The waiting game continues. I will keep you posted if anything changes.