Just about everyone in our household has been sick. It started with me. I was down for an entire week. Of course Dave was out of town and my mom and his parents had to come in to help out. Then Charlotte got hit with strep throat. Next up is Lee with strep throat - he is still home hanging out missing school. Dave had a bad cold while he was away. I am just waiting on Alex to get strep then we should be done. I have pretty much been stuck in the house sick or with sick kids for about 2 weeks. I am going crazy!
In the meantime, I am waiting on insurance to approve my next Avastin treatment. I am past due for the drip at this point and just waiting. I hate waiting on the final approval (pray it comes through). I am also past due on my MRI and PET Scan. Hopefully I can get back on track medically soon.
I have no clue where the month of Feb. went. We settle on the house next Thursday. Thank god we managed to sell our home in these bleak economic times. After we settle we can get the new house underway. Since the new home won't be finished until June we will rent back for one month and then move into an apartment for the remainder. The idea of moving twice is painful but this way the kids get to finish out their school year and then we make a clean break over the summer.
I am hoping to get back to therapy next week since I have missed so much with all this sickness. Hopefully I will have had the Avastin and therapy will bring some new cool movements.
Stay healthy.
A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Followers
A QUICK TIMELINE
2006
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
Good Links
Maple
1 comment:
Sorry about all the sickness. I think the entire state of Oregon has had this awful GI bug this winter ... entire families fighting over who gets to worship the porcelain thrown, yuck! Some un-lucky friends have had the bad cold AND the tummy bug at the same time. We were lucky enough to get them one after another rather than both at the same time. I hope the little z's are on the mend. Keep us posted on the Avastan etc. Love ya ~ Jess
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