A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Wednesday, August 19, 2009
Dad's visit
My dad came to visit us last week. He took some pictures of the new house and kids. We should be in the new place after Labor Day.
1 comment:
Anonymous
said...
Hi Heather, Hope school is going well for the kids. It is almost Labor Day so I am guessing the new house is very close to being done!! I know you are ready to make it a home!!
January Conceived our third child Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March Diagnosed with Hodgkin's and began 6 cycles of ABVD Pregnant with cancer - what luck
August Delivered Alex on August 28 PET Scan on August 31 - results that the ABVD did not reduce my tumor re-diagnosed with Primary Refractory Hodgkin's
September Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October PET Scan results that I could get the SCT
November Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December Final cycle (4th) of ICE Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February Released from hospital - 2 days later back with VOD Final release on Feb. 14 (happy v-day)
April - May Radiation treatments
June PET scan to see if treatment & SCT worked - it did and I am cancer free!
July Hospitalized for pneumonia and missed Charlotte Marie's 4th bday. On oxygen support
August Alex's first birthday - can you believe it!
September Returned to work part time Lee started kindergarten
October Diagnosed with BOOP - out of work again Back on oxygen support and steroids Resigned from job to focus on health
2008
Jan. 1 year anniversary of SCT - still cancer free
April Diagnosed with radiation myelitis
July/August Lost moblity in lower extremities - wheelchair bound. Using Avastin to try to stop progression of myelitis to my arms and hands
1 comment:
Hi Heather,
Hope school is going well for the kids. It is almost Labor Day so I am guessing the new house is very close to being done!! I know you are ready to make it a home!!
Thinking of you,
Kathleen
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