A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Thursday, February 18, 2010
Snow Days
Along with the rest of the mid-Atlantic we got more snow than we know what to do with. The kids we home all last week and finally got back on the bus this Monday. Three kids + 3 ft. of snow + a wheelchair = a crazy Heather. Dave managed to find his way to work and I would have too if it was an option but of course someone had to take care of the children.
2 comments:
Anonymous
said...
HI HEATHER,
LOVE LOOKING AT THE GREAT PHOTOS!
WE TOO HAVE SNOW HERE IN THE U.K. BUT NOTHING COMPARED TO YOURS!
Hi Heather, That snow was crazy and we still have some sitting in front of our house. Needless to say we don't get a lot of sun there! Your kids are beautiful!! Keep posting pictures. You are doing a great job. I may be going to the beach next week and would love to stop by and say hi. Call me when you can.
January Conceived our third child Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March Diagnosed with Hodgkin's and began 6 cycles of ABVD Pregnant with cancer - what luck
August Delivered Alex on August 28 PET Scan on August 31 - results that the ABVD did not reduce my tumor re-diagnosed with Primary Refractory Hodgkin's
September Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October PET Scan results that I could get the SCT
November Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December Final cycle (4th) of ICE Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February Released from hospital - 2 days later back with VOD Final release on Feb. 14 (happy v-day)
April - May Radiation treatments
June PET scan to see if treatment & SCT worked - it did and I am cancer free!
July Hospitalized for pneumonia and missed Charlotte Marie's 4th bday. On oxygen support
August Alex's first birthday - can you believe it!
September Returned to work part time Lee started kindergarten
October Diagnosed with BOOP - out of work again Back on oxygen support and steroids Resigned from job to focus on health
2008
Jan. 1 year anniversary of SCT - still cancer free
April Diagnosed with radiation myelitis
July/August Lost moblity in lower extremities - wheelchair bound. Using Avastin to try to stop progression of myelitis to my arms and hands
2 comments:
HI HEATHER,
LOVE LOOKING AT THE GREAT PHOTOS!
WE TOO HAVE SNOW HERE IN THE U.K. BUT NOTHING COMPARED TO YOURS!
LOVE, EDNA & THE TRIBE
Hi Heather,
That snow was crazy and we still have some sitting in front of our house. Needless to say we don't get a lot of sun there! Your kids are beautiful!! Keep posting pictures. You are doing a great job. I may be going to the beach next week and would love to stop by and say hi. Call me when you can.
Kathleen
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