Just a quick picture Louise took of Alex last week. He is a big 5 months old.
A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Followers
A QUICK TIMELINE
2006
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
Good Links
Maple
10 comments:
Love him, love him, LOVE HIM. That's all I have to say about that! Jessica
I echo Jessica's message. What a sweetheart! Now I am having strong urges for a munchkin fix. I need a dose of all three of them....soon! Love all of you! JOyce
If Alex becomes AWOL (absent with out leave), do not call the police. First, find out where Jessica is and listen carefully for any Alex noises in the background. We are confident that she will return him to his parents eventually or no later than when he becomes a teenager.
"A Friend"
He is beautiful ... as are Leland and Charlotte, if I do say so myself.
Proud Granny
Heather,
What a cutie pie! Hope you are gaining more strength and feeling better with each day. No doubt pitcures like these help! We continue to pray for you.
Sending well wishes,
Lisa Enright
Heather
Think of you. I hope the pain management is getting better.
Positive thoughts your way.
Kathy C
Hi Heather,
Can't wait to hold that baby again. He is getting so big. It is amazing how all your kids resemble eachother. Some of my kids look more like the neighbor kids than thier own sisters!
Can't wait to visit you. I had to eat the oranges I got for our other visit.
Thinking of you!
Kathleen
I was speaking to my very graphic design savvy cousin the other day, and I told her about "Team Heather", and look what she did!
http://www.cafepress.com/heathersteam
All profits will be donated to lymphoma research (of Heather's choosing!) Join the team in support of Heather kicking this disease in the ass!
Nikki
Nikki -
Apparel!! Your cousin is a awesome and so sweet. I will definitely be placing an order.
Michele
Heather -
Your kids are beautiful! Michele has told us lots about you in Moscow and we are thinking of you with good thoughts. Just know that people far away from you are pulling for you! Laura
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