Test results are back for Alex and he is free of infection - great news. So now we just have to get him evaluated at Children's in June. I am holding out hope that this was just some simple infection and there isn't anything major wrong with the little guy.
I was at Hopkins today and my counts are coming back up. My liver functions are also good and my shingles are almost gone. I shouldn't have to go back up until June for the PET scan!!!! I am so sick of the drive, getting blood draws, and just the entire scene. A break is long overdue and I am thrilled I get some time away.
I am pretty fatigued lately so I plan to rest up and relax until the tests in June.
A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Followers
A QUICK TIMELINE
2006
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
Good Links
Maple
5 comments:
Hurray Heather,
At last only good news!! Long may it continue!!Always thinking of you!!
Much love, Aunt Edna
Fantastic News! Couldn't be happier to hear that you are going to have a much deserved break! I will continue to check in and, as always, continue to pray for your FULL recovery. Bye for now!-J
Heather,
This is very good news. Perhaps you are over the hump. You are quite a fighter. We are always thinking about you and hoping that things will get better.
Uncle Chuck
Heather: Spent the day with your Big Sis here in Prague. We went to the Charles Bridge which is over 1000 years old and has 24 statues with religious significance. One of them is St. John and the folklore is that you can tough the statute and make a wish and it will come true. We both touched it at the same time and you know our wish is for your full remission annoucement in June.....and who is God to argue with a couple of tough old broads like the two of us? Hugs to the kids and especially to you. xoxo Aunt Joyce
YAAAAAAAAAAAAAAAAY!!!!!!!
(I just googled "heatherz" and this page came up)
so happy to hear of all this good news!!
Kristen
ps. thank you so much again for the garage space... my crap will be outta there in June!!
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