My counts:
Platelets 13
White 260
Neutro 208
Red 26.8
Good news they are continuing to come up. My fever disappeared and they think it is from the growth factor shots. I have to be fever free for 48 hours and my neutro's up to 500. The doctor thinks I can be out of here on Monday.
We are not telling the kids in case I get another fever and things get delayed.
Dave and Dan stopped by with the kids this afternoon. I am reading a lot to pass the time; tv sucks especially when you get limited access cable.
My dad and Mercy are back at home in Arizona. Dave's mom is next for helping out with the kids.
I wonder when life will ever return to normal.........
A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Lee
“Therefore, do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”
Charlotte
ALEX
Blog Archive
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2007
(145)
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January
(32)
- Day +14
- Darn fevers
- Day +13
- What to bring to the hospital
- Day +12
- Day +11
- Day +10
- Kids
- Day +9
- Day +8
- Day +7
- Day +6
- Day + 5
- Day + 4
- Day +3
- Day+ 2
- Day +1
- Day 0
- Day -1
- Day-2
- Day -3
- Day -4
- Day -5
- The what's next and what if's
- Day -6
- Day -7
- Lee's birthday
- Check in day -8
- Fever and night before check in
- Bone marrow harvest
- Schedule
- Thank god for the New Year
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January
(32)
Followers
A QUICK TIMELINE
2006
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
Good Links
Maple
4 comments:
Hello again Heather,
Love the photos of the kids!
Never miss reading any of your updates (although, as usual, it is after midnight here)!
Thrilled to hear that everything seems to be progressing so well & that you might be going home on Monday!!
Sounds like you can now see "the light at the end of the tunnel"!?
All of the family here in the U.K. send their love, Edna
Heather,
Just want to say hi -- I check your progress every day and am so glad to hear your counts are looking good enough for you to have a prospective release date! I can't imagine how much you must want to be out of the hospital and back home. Hopefully now just a matter of days... Will keep you in my prayers,
Justine
Glad your doing well Heather! I've been checking your blogs daily to see your progress.
You are a very strong person and I pray that you do go home on Monday!
I'm heading towards the SCT on 2/4/05. I'm praying that I do as well as you have!
Go Heather! I remember how thrilled the kids were when I was there and you came home from the hospital at night and were there to wake them up in the morning for school. Imagine their joy this time when it has been so long. AND, Alex will take more note of your return than he did when he was only 2 months old! You will be mobbed. Good luck getting them out the door to school! But imagine how excited they will be to come home in the afternoon. Hold on to the thought of their smiling faces and major hugs! Love you. Aunt Joyce
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