My counts today:
Platelets - 7K
White - 1110
ANC - 910
Red - 28.7
So they are going to attempt to send me home again today. I need a platelet transfusion; nothing new I have had almost 1 a day in here. They are sending me home with some antibiotics they will teach me how to administer myself so I don't have to hang out here. My doctor is so cool. I said we just need to give her the chance to get out of here! I agree because if not something could always pop up in this place that can make me stay.
I am excited but not getting my hopes up until they change my caps and unhook me from this stupid pump. The kids still don't know and the rule is we say nothing until I am sitting at home.
Wish me luck.
A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Lee
“Therefore, do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”
Charlotte
ALEX
Blog Archive
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2007
(145)
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January
(32)
- Day +14
- Darn fevers
- Day +13
- What to bring to the hospital
- Day +12
- Day +11
- Day +10
- Kids
- Day +9
- Day +8
- Day +7
- Day +6
- Day + 5
- Day + 4
- Day +3
- Day+ 2
- Day +1
- Day 0
- Day -1
- Day-2
- Day -3
- Day -4
- Day -5
- The what's next and what if's
- Day -6
- Day -7
- Lee's birthday
- Check in day -8
- Fever and night before check in
- Bone marrow harvest
- Schedule
- Thank god for the New Year
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▼
January
(32)
Followers
A QUICK TIMELINE
2006
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
Good Links
Maple
9 comments:
Heather,
You are quite a trooper! Here's hoping you get your wish to go home today! Getting home can speed up your recovery.
Uncle Chuck
Heather, I am so impressed with this blog site, looks so professional. I've been praying for you, especially for you to get OUT of the hospital and get back home with all its comforts. BTW, in re the school thing we talked about before Christmas, from the small amount of research I've actually managed to do, private school is VERY expensive, especially non-parochial. Grace up the street from us is $15,000 for kindergarten. Even with help from my mother, it's just not gonna happen. St. Bernadette's would be about $7 or $8 thousand, perhaps do-able if really necessary. Woodlin here we come! Candace
Heather,
I'm not much of a blogger but I talked to your dad today and wanted to say hi. Your dad is a really great person.
I meditate a little, have faith in God and have tremendous conviction in positive energy. So I will send my entire belief system your way.
I hope tomorrow is a better day for you.
My very best wishes.
PK
Heather,
Really hope that you are reading this at home!?
Kept my fingers & everything else crossed for you!
Looking forward to reading all about your "reunion" with the kids & David at home!!
Much love, Edna & Werner
I hope your home! And, I'm always praying for you!!!!
Elisabeth
Hello Everyone,
This is Heather's sister Michele. Heather went home on Tuesday and the same night came down with a fever. She was re-admitted the next day to the hospital and diagnosed with pneumonia. The doctors anticipate that she will be in the hospital for at least 4-5 more days. Heather is very weak and can not update her blog. This is a set-back, but hopefully just a small one.
Thanks for all of your support, I know that it means a great deal to Heather!
Michele
Hi, Thanks for your update, Michelle. We've been thinking of you especially this week, Heather, and send you our very best as you battle on. With love, Bridget and Steven
Hi Heather,
I hope you start feeling better soon. Again this sucks, but you can make it through. You are so strong, determined and stubborn!!! Keep fighting!!!!
Thinking of you,
K
Heather,
I just wanted to drop by and say that there isn't a day that goes by where I don't think of you and there isn't a night that I don't pray for you, dave, and the kids. I hope to be able to come up soon and help out in any way possible. I love you so much.
Denise
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