It's funny how the nurses and doctors ask you what you do - a spot on their forms to check off. I always pause now. I feel like being sick and beating this cancer is my full time job these days. I do tell them what I did do and hope to return to but it all seem so far away sometimes. When I sit back and think I will have been dealing with this for almost a year - it blows my mind.
So I began the cytoxin drip today, well actually last night around 3 AM begins all the pre meds then they actually hang the chemo at 6 AM. Next the doctor will come in and remind me to get up and about. I should remind him the nurses had me up half the night peeing and popping pills.
Overall I just feel like a truck ran me over - tired. Most likely all that fun in the early hours with my nurse. Still no puking and I am happy as a clam about that.
Dave, Lee, and Charlotte came up for a quick visit last night. I was wonderful to see them and hug them. They made me some artwork for my wall and I have proudly put it up. It reminds me of home; looking at the fridge.
I just keep praying to god that this transplant works. The little z's need me.
A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Lee
“Therefore, do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”
Charlotte
ALEX
Blog Archive
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2007
(145)
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January
(32)
- Day +14
- Darn fevers
- Day +13
- What to bring to the hospital
- Day +12
- Day +11
- Day +10
- Kids
- Day +9
- Day +8
- Day +7
- Day +6
- Day + 5
- Day + 4
- Day +3
- Day+ 2
- Day +1
- Day 0
- Day -1
- Day-2
- Day -3
- Day -4
- Day -5
- The what's next and what if's
- Day -6
- Day -7
- Lee's birthday
- Check in day -8
- Fever and night before check in
- Bone marrow harvest
- Schedule
- Thank god for the New Year
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▼
January
(32)
Followers
A QUICK TIMELINE
2006
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
Good Links
Maple
3 comments:
Heather
I think you're plan of action should be order what you don't want and see if you get the food you truly want. Just to think about something aside from meds every once in a while will do you good. Congrats on the no puking. Hope it lasts.
Hang in there.
Dear Heather,
I am Michele's colleague, Karen Roberts. Just a quick note to let you know that there is another big group of folks here at OPIC standing behind you. I'm amazed at your strength and spirit. Keep up the good work and hang in there. I look forward to meeting you when this is all behind you.
All the best, Karen
PS: Love the pics of the little z's. They are adorable!
Heather:
I agree with Kathy, start playing with the kitchen staff...
Just want to let you know we are all thinking of you and love you.
Michele (Peake - need to clarify since your sister and I spell it the same)
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