My white count is still below 50 so nothing new to report. The last platelet transfusion worked and my count is holding at 16K. If it drops below 10K then they give a transfusion. My reds are a little low and I think I will be getting a blood transfusion today.
I got this nifty new medicated mouth wash that totally numbs my mouth for a little bit. Enough to eat yogurt and have my juice without pain. The nurse this morning said some people get them so bad they can't even drink! I am feeling really lucky that I can still have my mushy food. I guess if could be worse.
Louise is coming up today and my mom tonight. Other than that I am just killing time.
Time keeps dragging on........everyone knows the rest of those lyrics....yep I am comparing this place to prison. Hopefully I will be set free soon. I miss the fresh air.
A journal to keep everyone up to date with my Primary Refractory Hodgkin’s, radiation myelitis, and the little Z’s.
Lee
“Therefore, do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”
Charlotte
ALEX
Blog Archive
-
▼
2007
(145)
-
▼
January
(32)
- Day +14
- Darn fevers
- Day +13
- What to bring to the hospital
- Day +12
- Day +11
- Day +10
- Kids
- Day +9
- Day +8
- Day +7
- Day +6
- Day + 5
- Day + 4
- Day +3
- Day+ 2
- Day +1
- Day 0
- Day -1
- Day-2
- Day -3
- Day -4
- Day -5
- The what's next and what if's
- Day -6
- Day -7
- Lee's birthday
- Check in day -8
- Fever and night before check in
- Bone marrow harvest
- Schedule
- Thank god for the New Year
-
▼
January
(32)
Followers
A QUICK TIMELINE
2006
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
January
Conceived our third child
Began to display symptoms of Hodgkin's - night sweats, itching, swelling, shortness of breath
March
Diagnosed with Hodgkin's and began 6 cycles of ABVD
Pregnant with cancer - what luck
August
Delivered Alex on August 28
PET Scan on August 31 - results that the ABVD did not reduce my tumor
re-diagnosed with Primary Refractory Hodgkin's
September
Consultation with NIH and Hopkins - recommended that I have 2 cycles of ICE then Stem Cell Transplant (SCT).
October
PET Scan results that I could get the SCT
November
Had another cycle of ICE while waiting for transplant (3rd) Began SCT process
December
Final cycle (4th) of ICE
Unable to mobilize stem cells and waiting for bone marrow harvest
2007
January
Harvest bone marrow from bones under twilight meds Admitted into hospital for SCT; new birthday Jan. 16
February
Released from hospital - 2 days later back with VOD
Final release on Feb. 14 (happy v-day)
April - May
Radiation treatments
June
PET scan to see if treatment & SCT worked - it did and I am cancer free!
July
Hospitalized for pneumonia and missed Charlotte Marie's 4th bday.
On oxygen support
August
Alex's first birthday - can you believe it!
September
Returned to work part time
Lee started kindergarten
October
Diagnosed with BOOP - out of work again
Back on oxygen support and steroids
Resigned from job to focus on health
2008
Jan.
1 year anniversary of SCT - still cancer free
April
Diagnosed with radiation myelitis
July/August
Lost moblity in lower extremities - wheelchair bound.
Using Avastin to try to stop progression of myelitis to my arms and hands
Good Links
Maple
3 comments:
Dear Heather: I am your Aunt Sandy's sister-in-law. (Chuck's sister) My name is Irene Wolfe and I live in Nampa, Idaho. Sandy has been keeping me posted about your progress since almost day 1. I have decided you are my number one hero. I have been battling some health issues for the past seven years, mainly heart, but now Crohn's and COPD. When I feel like throwing in the towel, I think of you. I am an "old geezer" (as my 7-year old granddaughter says) but still interested in living and fighting for the right. So, I commend you on your strength (even though you are tired) and your courage. God bless you and help you win this fight!
hey! some ideas for mushy food. don't know if they're allowed though:
smoothies
avocado (yum!)
jello (isn't that a hospital staple?)
i like cold oatmeal and cream-of-wheat, but i may be the only person.
vichyssoise
i guess that's not much. oh well.
oxoxox
libby
Heather,
Keep believing in yourself. I know you will get through this and be back home with Dave and the Kids before you know it.
Droopy
Post a Comment